About Me

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Geez, what more can I say here? Just look at my interests, movies and books - it all says a lot about me!

Thursday, October 10, 2013

ATTENTION CRAFTERS!!

http://thecrochetcrowdblog.com/2013/10/10/100s-of-patterns-and-photos-stolen-by-diypatterns-com/

Saturday, June 29, 2013

June 30, 2013...a day to remember!

Well, today, for the first time since my dx, I actually went out in public IN A SLEEVELESS T-SHIRT! Though I was very self-conscience of the visual effects of such an act,  once I left the house -- there was no turning back!  Over the years I've developed lesions on my upper arms;  but today,  the extreme heat/humidity made it so that I pulled off the t-shirt WITH sleeves before dh & I went out.
I guess it's called something like GROWTH!
Pso.... for those who just think they CANNOT go out in public with lesions wracking every limb...today, June 30, 2013.... I DID IT!!

Tuesday, April 6, 2010

Uggghhhh... All the Kings Horses and all the - you get the idea!

Can anything else go wrong with me!!!! NOW!, I have sinusitis and most probably strep-throat. I just feel like a Mac truck will be along any minute to end it all. If I am not scratching my head, back, leg, [stuff] - yea, I got a flare there too! At least it is a strong probability. I had a biopsy taken Monday - yep!, they took a chunk or at least a bit out of my [stuff]. On my way out, I stopped the nurse: "How bad is it going to feel when the local wears off?" "Oh, not bad at all... you'll just know that something was done there." YEEEEAAAAAA! riiiight! If I didn't like the ITCH before... NOW IT BURNS! Ha! Oh, yea, went to my eye doc to see why my eye was hurting (felt like I had an extra eye-ball in there!) and why my vision in that eye was all blurry. Turns out - I was at the WRONG doc's office! That's when I found out about the sinusitis - from my eye doc! Talk about feeling stupid with a CAP 'P'. It very quickly moved to my throat - thereby giving me the possibility of strep or even tonsilitis! yea, 40 y/o and still have those problem makers!
So, I am trying to get to my PCP this week (pray for the SQUEEZE in for me!). When I do get there I have a HOST of 'shine-ola' to go over with her. The pain in my shoulder, back and knee... derm said to ask my PCP first before giving it the 'psoriatic arthritis' name. Great! In the mean time, I can use but only half my friggin' limbs!
Man! And being vegan through all this - THAT is a whole different set of FIREY RED HOOPS I need to maneuver. Currently the treatment I have for the pso is all external... and I read ALL ingredients. Save the fact that each pharm company (now up to 4) has labs that test.... well, you get the idea. At some point, I just cannot avoid certain unsavory things as a vegan. For Pete's sake, I am not suicidal! Nor am I stupid or a masochist. I don't want this disease NOW or later or EVER... the best I can do is my best. I cannot control anyone's ignorance, heartlessness, or otherwise inhumane behavior. But I digress.....
Being vegan and trying to deal with the upper respiratory infections - THAT is a trick. Most if not ALL antibiotics are laced with some form of cow milk product. Uggghhhhh! I've tried that before.... pill came back up with in minutes. There is, though, another option: getting an injection. I am not afraid of needles... just WHAT'S in the thing behind the needle. The upside to this option: it can not come 'back up'. Sooooooo, I wait for that 'squeeze in' appointment with my doc (who, btw, has bent over backwards for me as a vegan and she is wonderful about it!). Pray that she can come up with a solution for me that is minimally invasive and put me back together! Feeling like Humpty Dumpty! lol
In the mean time... I will probably not be blogging very much as I really need to get this illness behind me. Classes start on May 17th. And if she (my doc) decides it's time to put the 40 y/o tonsils out of their misery - I'll need time to recover before school starts! Not that I talk a lot - I don't. But heaven knows... I AIN'T EATING JELLO!! I prefer the awesome ice cream from God Himself: made of coconut milk!
Any-who.... I am off here! Ta-ta my friends!

In His Gracious Grip,
Me

Thursday, April 1, 2010

Does IT know... I mean REALLY!!

Well, today is a blah day. I've been 'treating' since Friday... it's time consuming and it seems that I need to be an acrobat! The places I need to stretch to and reach! Seriously! I am tired - not from pso, or maybe it is... all I know is that the physical exertion from doing what is necessary is wiping me out! Add to that that it seems this THING knows! IT knows that I am fighting it and it is attacking me in other ways.... I have been in a lot of pain lately. My shoulder has been so sore for about a month (since before my dx). My ankle, my knee and my back are getting there too! Oh, and lets not forget the flares that have come up since I started treating! WOW! Does this stuff have eyes and ears to KNOW that I am trying to rid my body of it??!??
I just want this under SOME kind of control before I start school. I don't want to start school and have like a zillion doctor appointments to go to during my first week of classes! Is that too much to ask?? Just some down time for me to acclimate to my new schedule of being a student again.

And speaking of school: I have received my acceptance letter from DTCC! YAYYY! My FASFA, is well on it's way to being complete... just waiting on award letter from them now. I have my New Student Orientation Session on April 22. That's when I will see my advisor and pick my classes and such. I am sooo anxious to get started. Last week, I made myself a whole nuisance as I was trying to push things along for myself - something that some folks say is a good thing. Others, the people I kept after, not so much! Ha Ha! Well, this is the life and actions of an adult student. I am not a teenager fresh out of high school. I have more anxiety than the entire senior class of every local high school *combined*. Not only will I be nearly the oldest student in class, but I could quite possibly have a very visible, uncontainable pso problem when I start. That makes me anxious and uncomfortable to think about.

Anyhow, trying to lay this all at the cross. Along with all this going on, I am still the parent (a single one at that!) of a 16 y/o girl. Scratch that! A young woman! AAAAHHHHHH!! Yea, I will be pulling things together to go prom shopping soon: YESTERDAY! I guess I should be happy with this one: he's WAAAAYYY better than the last one and I am more comfortable now than with the first one! (Dr. Jekyll, if you're reading this: DO NOT LET YOUR HEAD SWELL!! Szchuk: if you're reading this: DO NOT GET ANY IDEAS!!).
So, this is my list of jobs lately:
  • Child of God
  • Prayer partner
  • Mother of 16 y/o
  • Student
  • Friend
  • Daughter
  • Pso survivor
Wheewww! I am tired just at the end of the written list! lol. Oh yea I almost forgot: I am vegan too! What does that mean? Well, everything I eat is made from scratch mostly because I am an Organic Vegan. If its got more that 3-5 ingredients in it, I leave it! I'd rather make my own! And that's not just for me, my girl is an Organic Omnivore. So I really spend a lot of time in the kitchen. With the pso attacking my joints now, that is a chore!
Made lasagna the other day... uuuggghhh! When it was done, I had a small piece and just about fell over with exhaustion. Last night I threw together some stuff to make tofu steaks... Y U M M Y!! I try to remember what I put in things so I can develop recipes. Hopefully THAT one I'll remember. I will post my recipe for Vegan Lasagna on here... maybe later tonight??? And I will jot down what I did last night for the steaks for a recipe on that.

Well, I got an eye doctor appt this afternoon, so I'd better get going. The process to get myself ready to be out in public now takes longer....maybe I'll make it to the appointment a little early!?

Will bring paper/pen to write out recipes to share! Thanks for reading and letting me ramble!

In His Gracious Grip,
Me